By Dave#2 | March 8, 2012
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By Dave#2 | March 4, 2012
Yep - I am. We had a swim meet scheduled for Saturday and I had to lie to Sal and tell her it was cancelled. :-/ We’re having some side effects from her birth control pill - as in a period. :-/ It’s pretty heavy and there’s no way for her to swim with it and well, I’m a great Mom but I draw the line at inserting a tampon.
The real kicker is that the meet was the one that determines who will go to State in the summer. Plus I was sick (again) this weekend. I don’t know what it is but sickness seems to really hold on to me lately. So let’s just say my faith in God being so *good* “all the time”, is about to the limit right now.
I know things could be a lot worse and if that’s the worst thing that happens - well, our life is pretty good. But it just ticks me off. Like one more check mark on the “Things Suck” list. 
She did well with the news - the only thing is I didn’t really think it through. The other kids on the team will prob be talking about it at practice. I should have said she couldn’t go because *I* didn’t get her physical in on time. (she knows you have to have a physical and paper signed by Dr each year). I have to admit that I lie very horribly. (even though my Mom would prob disagree about that one).
She went with us to Jack’s game. ….. Jack - Jack has really stepped up lately. Like I said - I’ve got some kind of malaria-flu-cold thing going and on Thursday night I went to bed early. Bill had a meeting at Jack’s school about a field trip they’re going on together and before he left he put Jack in charge.
I emerged from my room around 8pm and told Jack I was going to take a bath. “Ok, Mom - Dad said *I’m* in charge”. But that stinker really did a GREAT job. He put all the dinner left overs away and cleaned up the table. He READ with Sal and I only heard raised voices once AND he got her water and stuff and put her to bed! I was really impressed and told him so. It’s funny how he always wants attention but when you really give it to him he sluffs it off. 
So I’m a little better - I can at least blow the crap out of my nose and sit a couple of hours without coughing so Sal and I are going to attempt the grocery store. She really enjoys that so her weekend wasn’t a total bust.
She’s really good at knowing that we need fig newtons and granola bars and craisens and even coffee.
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By Dave#2 | March 1, 2012
Something
that has always been a problem has really come to a head lately: Sal is the
WORST at telling you how she feels. #1 - she has my Mother’s “I will myself
well” thing. “I’m not sick,(cough, cough, spit, cough) #2 - she hates to miss
ANYTHING . #3 I swear she thinks being sick is a punishment. Up till now,
this hasn’t bee TOO much of an issue. Honestly, she does come from pretty
healthy (and let’s face it - hearty) stock so a cold doesn’t really bring her to
her knees and other sickness usually has some outward signs. She’s not been on
any medication - so we didn’t have even have side effects to
consider……….
ENTER - Her period. 
Now, I have no idea about
cramps, headaches, you name it and to top if off - I put her on the pill to help
“schedule” the periods and we’re ALL messed up.
If asked if her tummy
hurts, her head, or her “privates” you can be sure you will automatically get a
“no”. So here’s my idea to improve on God’s “perfect” plan. If you’re going to
make a person that has absolutely NO use for a period - why can’t you then give
that said person some kind of gage - a barometer or something that buzzed when
they were feeling something that needs some attention or at the least would help
make sense out of the weirdness that is seeming to accompany all of this. Then
again - she could just be going through something that has absolutely NO baring
on this at all!
There is a story from my family about how a friend of
the family came to our house one day to give me a birthday present. It was a
puzzle and as I opened it (in front of said family friend) I announced (in my
big outdoor voice) that I didn’t LIKE puzzles. And as they tried politely to
ignore my nasty behavior I became more and more adamant that I did NOT like
puzzles. Knowing my mother it probably ranked right up there with her most
embarrassing moment. But can I just repeat again: I DON’T LIKE PUZZLES!!!!
It’s like some wicked way of getting back at me for my assertiveness as a
child.
It’s funny but it’s not when I think that Sal could be in pain.
That if I only knew I’d be able to fix it. Sometimes it just doesn’t seem fair
that with all the crap that we go through - it just piles on and on. Granted
there are others with far more problems and God knows I wouldn’t change places
with anyone - but DANG. Sometimes I just look to the sky and wonder just what
kind of sick sense of humor all of this is serving. Ugghh.
So enough of
my pity party. Have I talked recently about how much I love the teachers that
surround Sal. And no, I’m doing this because she reads this blog (well, not
totally). I can’t express how much I’m going to miss Humphrey. I think I
said that about JES too and hopefully I’ll say it about BHS.
Through
Sal’s winning of gold at the State Winter Olympics it has become very crystal
clear to me how very special these kids are and how you really are honored to be
in their lives. Even though, as evidenced by the accompanying story it can be a
very bitter-sweet honor. I’ve met the very BEST people on the face of the earth
- and it’s all due to Sal. I’ve learned some MAJOR life lessons and have come
to appreciate things I never though I would. Through my life with her I’ve been
able to understand the joy of a mother who was WAY excited that her kids said
“Piss off” because for 14 years she couldn’t make the P sound. There’s
something about that the “normal” people will NEVER get.
Standing in
line with Sal waiting for snowshoe line ups and seeing children in snowshoes
using walkers on skis. Children skiing and using guide dogs . It’s amazing - a
most wonderful world of REAL. No pretensions. No fakeness. I am a very lucky
person to get to be a part of that world. And as she goes through these trying
times I guess I need to remember that more.
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By Dave#2 | December 4, 2011
Well, it’s been a weekend to remember. Sal got her period on Saturday. Nature sure has a wicked sense of humor. How does one who STILL has problems in the toilet and has accidents still (at 14) get a period? I mean it’s something she will NEVER use.
She thought she had pooped her pants and when I told her no, she had her period she began to cry. “I don’t want my period”. She said it so matter-of-factly, like she could *will* it away. She was ok - because we were soon on our way to a Holiday Fest with the Fox critters.
Sal did her usual Obi One “use the force” thing on Friday night. She was getting ready to go to the Jr High Winter Carnival and told me “I’m going to win a fish tonight”.
Sure enough, she came home all smiles with her chubby little hand holding on to a plastic bag with a tiny goldfish in it. She reported that she had played buckets, bingo, soccer, and wrestling. I was curious about the wrestling and when I questioned her further she told me she had beat a boy. :-) (poor boy).
After our fun with the Foxes we came home and Sal had to immediately leave for caroling with the Special Needs kids. If you know how Sal sings - it should have been a *lovely* performance. :-) The saving grace is that they caroled at the Nursing Home - so maybe the hard of hearing escaped Sal’s melodious voice. And God knows everyone is melted by that smile of hers.
Mrs E stopped by in the afternoon - totally shocked me. She’s Sal’s social worker and big part of our team. She had run into Bill in the morning and he had told her of Sal’s new found “womanhood” and so she came by with a little giftie for Sal. She also called Mrs P - team leader and shared with her. They were both so excited. Isn’t that nice? I don’t know what it is but we have ALWAYS had the very BEST teachers and team though Valley View. I swear - it’s like the Sal is not only mine but the whole community’s. SO many people care about her and go out of the way to show it. Really made my day.
So the day I’ve been dreading for about 2 years is finally here and over. I’ll be going to see Dr L about putting Sal on the pill or shot or what ever. My Oct List told me of shots every 3 months in which you don’t have a period at all. I’ll also be inquiring at what age we could think of hysterectomy.
Sal has done really well. We have just one more hurdle - we swim tomorrow, so we’ll see just how bad things are “down there” and *if* we can swim. :-/ If we have to cancel THAT - she may be ready to do the harricarry. :-)
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By Dave#2 | November 28, 2011
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